She like to get a bath!!!!

Patsy is certainly a study in progress. The last couple of nights I have gone to bed wondering what i would awake to. Unable to wake her or get her to respond to me when I try to talk to her. But, in the mornings, she is always there and with a good smile and a kiss. I have to feed her about 50% of the time with a syringe but I am still getting her to eat. She is holding her weight better but still not putting much on. I see she wants to talk but just not able. Maybe she just wants to keep me on my toes.

The new bath gal came by today and I thinks she is going to work out great. I left patsy with her and went to Bi-Mart and then up to Manns creek and back for a little drive. what a beautiful day.

I am working on getting my teeth fixed and tomorrow I have another dentist appointment. It is going to cost way more then I can afford but I have asked the kids to help because I need to be able to take care of Patsy without dealing with the pain. tomorrow I am having the Bottom teeth fixed with two fillings and then the partial will be all that I have left on the bottom. It is going to cost $508.00 tomorrow which I have after they put the disability money in the bank. How I am going to pay the bills that are due is yet to be determined. Cary says to get it done and we will get the bills paid. I don't know what I would do with out them. I talk to her all the time on skype and she probably gets tired of me calling but I need to vent once in a while.

So. Patsy is clean, smells good, looks good, and is ready for something to eat, Again!!!!!

Lucile brought over some potato soup yesterday. We are going to give that ago. Thanks Lucille for the visits and the soup. Okay, gotta run, thanks for being there, RAZ

I need to see the sun!!!

Well, we were going to give Patsy a nursing home bath today but my schedule got screwed up and patsy did not seem to feel all the good so we canceled.

I am not sure that I will ever get used to looking over from time to time and checking to see if my wife is still breathing. I don't even think I can get used to shaking my wife from time to time just to try to get her to wake up. It is hard enough to figure out what to cook and feed Patsy and how to do it with a syringe and yet it is a job that I GET to do.

Patsy made me promise her that I would be the one to take care of her and I would not have it any other way, but sometimes she makes it pretty hard.

So, when Patsy does give me one of her great smiles or tries to talk to me, or even a kiss, it sure make the world go around just a little bit better. So we keep traveling a day at a time and I am sure glad you are along for the ride. EAZ

I like it like this.

Today was probably the best day that I have had with Patsy in weeks. I woke up at 6:30 and looked over and she was awake already. She was listening to the music I had on tv. Her eyes were clear and her smile was great!!! I said "HI BABY" and she said it back to me. HOLLY MOLLY!!! What a way to start the day. I had to leave and do a dentist visit. She sat in her chair today and just really did pretty good. I still sleep in the chair at night so that I can hear her and make sure she is okay, but with the new chair for her, I am cramped. I am going to have to do something different.

As long as she keeps getting better, I am happy no matter where I have to sleep.

See You tomorrow, RAZ

Looking good

Here is a quick post!!! Patsy trying to drink her own boost!!!

How much salt?????

Patsy had a good day today. The last two days she spent mostly asleep. I called Carol and she had me give her some stuff and today she was awake most of the day. She ate everything I gave her and she finished it off tonight with another bowl of ice cream. I sometimes get pretty down and I think I am not doing enough. But, days like today make me feel better. I have been doing a pretty good job of turning Patsy and stopping any bedsores from coming back.

I have done something to my ankle. HOLY CRAP IT HURTS!!! I was hurting really bad today and I was not feeling very good so I thought it must be a good day to make some calls and get some answers as to why I have not got Patsys new wheel chair yet. I wished I had hurt my ankle 2 weeks ago!!!

Patsy was sitting in her new chair before 5:00 today. I told you I was hurting, not a good time for them to hear from me.

I have been baking bread again. To buy a loaf of bread that I can stand to eat is 3 to 4 dollars a loaf. So, about a week ago, I decided to get busy and learn to make bread again. Do you know there is a difference between 2 tsb of salt and 2 tbl of salt?????????????? that loaf of bread went in the garbage!!! after about three loafs, I finally got it figured out. I love the smell of bread.

Ok, I am off to bed. I have a dental appointment in the morning that I can now keep because I have had a little help from the family and friends. Keep riding along with us RAZ

Patsy with her newest granddaughter!!!

Doing better today

I went to Bi-mart yesterday. I decided to look for a t-shirt for Patsy. She has been wearing a bunch of shirts that she has had from different events that we have done. most of them are large and they are to big for her. I didn't mind using them because I have been known to spill on her when I am feeding her.Yes I use a bib on her, but that doesn't mean when I give her a drink or something that I don't make a mess.

Anyway, I found some cute spring shirts that were on sale for $4.99 each and I bought 2. They are cute and I put one on her last night.

I was cleaning Patsy the other day and I noticed that her tail bone seemed to be out of line a bit. I thought maybe it was just the way she was sitting. Carol called yesterday morning and guess what she said. Yup, we need to adjust her tail bone. Amazing!!!!. So I got Pat ready and we went to Emmett. After a work out by carol and a ride home, she was pretty worn out when we got back.

I got her fed and ready for bed and we watched a little tv.

I woke her at 8:00 to see how she was doing today. I got a big smile and that makes my day. She tries to talk and if she ever gets to that point, I may be in trouble. It would be nice if it could be controlled with a switch.

We had pancakes and she drank a boost for breakfast. She didn't eat a lot but I will feed her again soon. She went back to sleep. I guess that means I should get dressed and get some work done. Thanks for riding along, raz

I shouldn't even be on here tonight

Just a quick note to let you know that Patsy is doing okay. She has been sleeping a lot lately because she has been sick I think. I made her sit up about 6:00 to eat and she has been awake every since. I just gave her a bowl of ice cream and got her ready for bed. She looks better tonight. I am having a few problems but I will work through them. I am really getting cabin fever and want to go somewhere. I also really miss talking with patsy. I talk but she doesn't talk back. I have a lot I want to talk to her about but mainly just talk to her and have her talk to me. We used to go on drives and talk and talk. i guess I miss that. I couldn't even go to town for groceries today because they closed the road because of flooding.

I also have been having some teeth problems and I am trying to figure that out. The family and church may be able to help. we will see.

Here is some good news about Patsy. She has been shaking like forever and it has been hard to move her arms because she resist. yesterday and today she has been more relaxed. I also think that is why she has a hard time with weight because she is always burning it off. But I really don't know so I am always trying.

As you can probably tell, I am not the best that I can be tonight so I'll drive the rig to the side of the road and start the journey again tomorrow. RAZ

What will I have in the morning?????

On again, off again!!!!!!I wished she would make up her mind. She is so weak that it doesn't take much and she is running a fever again. I am not sure that I understand because she doesn't cough or sneeze but she just runs a temp. Last night it was 100.8 and the worst party is that I can tell that she is not feeling well. The good news is that with the help of a suppository, she was able to have a bowel movement with out my help. That has to make her feel better. I have been getting over 2000 calories per day down her but I am pretty much doing it with a syringe because she doesn't want to eat when she is sick. It is easier and faster.Last night she looked really bad. I went to bed wondering what I would find when I woke up. I checked on her several times last night and I turned her and this morning, she looks better. I fed her a bowl of cream of wheat with butter and brown sugar and I did it with a spoon. She is resting and I am trying to get the dishes all done up cause Christy is coming to sit with her while I go to a meeting in Boise tonight.

I just got done holding her hand while watching a little tv. I trimmed her finger nails and of cours, I got a nice kiss. I am going to go make her some soup and then I am going to get out of here to go to Boise. Thanks for riding along, RAZ

The relatives came by and it was good to see them

A pretty good day again. Patsy's brother and sisters came by today. BIG SMILES!!!! They got to see Patsy move her arms and legs and what was really cool was that Patsy was holding a bottle of Boost and all of a sudden she put it up to her mouth and tried to drink it. The lid was on but it was wonderful to see her doing that. She is trying so hard to do things. When they got ready to leave I could have sworn I heard her tell them goodbye and they said she did. HOLY SPEECHATHON!!!

Davalee made me make her one of those peanut butter milk shakes. Oh wait, that was Patsy for dinner tonight. Anyway, it was good to see them and I hope they enjoyed seeing Pat. They said Patsy was looking better then the last time they saw her. I hope they weren't just saying that. Being with her all the time I sometimes question myself as to whether she is improving. I see it but is it wishful thinking???? I don't think so, I think she is doing better.

So, we will put the trip on hold and get a good night sleep. A nice breakfast in the morning and the journey will continue. Thanks for being there with us, RAZ

I am not sure which one of my great daughters change patsy's blog background but I like it. Thanks for taking care of me.

Holy milk shake!!!!!! I found something that should help put some weight back on patsy!!! It calls for 1/2 cup of whole milk, three tbsp of peanut butter, three tbsp of chocolate syrup, and a half a cup of vanilla ice cream. Blend it together and you have 783 calories, YUM YUM!!!! I tried it!! Yup, just as soon as I finish this one. I think I will make one for Patsy. LOL

Patsy had a pretty good day and I am about to make her some cheesy mashed potatoes for dinner and then a bowl of ice cream for desert.

Chip jump up on her bed today and was really glad to be by mom. She reached out and placed her hand on his head. It was cute so I put it on here I think. Gotta go make dinner, I am late. Thanks for riding along, RAZ

I love days like this!!!!

What a great day!!! Since I last wrote on here, Patsy has been doing pretty good. She has been eating and moving her arms and legs and smiling and she looks great.Carol really helped her when she adjusted her brain stem.

The therapist that will be working on Patsy as soon as I get things switched over came by and worked on Pat today. She was filling in for Monique but will be the one that will be assigned to her soon. We actually got Patsy up and helped her to stand. I loved watching her and was amazed to see her put support on her legs. Patsy is also grabbing water bottles and she is using her hands and arms to get to itches on her face and head. The herbs that Carol gave to patsy seems to have done the job and Pat has not had a fever for 2 days now.

I would like to thank those that have helped us financially this month. It was a bit scarey for a day or two but you have continued to touch us in a way that I don't know how I can ever express our gratitude. I look forward to the day the patsy and I will be able to try to return the blessings. Thanks for riding along with us on the journey, RAZ

I think she has a gift!!!!!!

Some people have a gift and I believe Carol has a gift. She does things that just blow me away sometimes. I told you the last couple of days that Patsy wasn't doing very well. I did not know if it was the flu or what. Night before last, I called carol and told her that I was concerned about patsy and she said she would run her and get back to me. Yesterday she called me in the morning and said that her brain stem was out and that I needed to come over so that she could re-set it.

HOLY GAS PRICES!!!!

So here was my problem. First of all, you have to really have faith in Carol to believe that she can run a saliva sample given to her over a month ago. Then you have to really have even more faith to get Patsy bathed and dressed and loaded in the car to head to Emmett knowing that it will take your last 20.00 for gas to get there and back.

Patsy was pretty sad looking and wasn't even able to hold her head up. But we got there and I got her out of the car and into the office. I was able to get her out of the chair and onto the table and Carol went to work. I watched with my own eyes as she tried three times to get it back in and when she would test to see if it had gone in, it had not. But she didn't give up and we moved her back on the table a bit so that her head would move more freely. This time she got it back in place and I watched her test it and she was showing perfect. We left her on the table to rest and not move for awhile to let the brain stem settle in. Carol gave her an herb to take for 17 days and we were out of there. I told Carol that I could not pay her this time for the Herb and she said I was good.

The ride home was much better then the trip over. She looked better and sat up and looked out the windows more. I even scared her a bit when I closed up on the back of a car getting ready to pass. I think she thought I was going to hit the car and she jerked.

I got her home and cooked her dinner and she did much better then she had been doing. Carol called last night and told me that she ran Patsy again and she could see that she was doing much better. She didn't ask me, she told me. She was right again!!!!

Patsy kept me awake most of the night because she kept moving and stretching her legs and arms. It was worth being awake to see her moving a bit.

Chad just called me and said that he thinks he sold a carpet rem that I have in the storage shed. It won't bring much but it should be enough to buy propane and gas to get me by until the end of the month.

So you see, some people do have the gift and some of us continue to receive blessings. Don't get to far behind us as our journey continues, RAZ

She is awake at least!!!!

Well patsy is awake today but I had a really hard time feeding her. She just doesn't act like she knows how to open her mouth. Is it still because she isn't feeling well or do we have problems. I wish i knew. I have a call into Carol so we will see. I am heading to Bi-mart to see if I have enough money left to buy some wipes. I paid all my bills this month but not much left over. Chad owes me a little and I hope he comes through and then I think we will be alright.

Patsy did not have a fever today yet and I think that is a good sign. Maybe she is getting over her flu or what ever she had. I want to get her back on something to help her brain before it is to late.

Maybe things will get better today, RAZ

Can someone tell me what to do!!!

It has been a hard couple of days for us. When Patsy gets a little sick, her body really does some weird things. First of all, she has been sleeping a lot. I wished I knew for sure that she is okay, then it wouldn't bother me so much.

So, last night I didn't know what to do. She wasn't reacting to me at all. I did manage to get her to eat some ice cream about 9:00 but she didn't open her eyes to do it. I have been feeding her when I can to try to keep the weight on her. I really don't want to mess with a feeding tube.

I gave her some Tylenol at 10:00 and we went to bed not knowing for sure what the morning would bring. At 1:00 I changed her sleeping position and she was still a little warm. 3:00 game and she had a temp of 100.6 and climbing. I gave her some ibuprofen. 5:30 came and I again changed her sleeping position and she was cooler. At 6:45 she started to stir. I immediately woke up and watched her for a bit. She started to mumble so at 7:00, i decided to get up from my really comfortable recliner (yeah right) and see what I had going on. I asked her if she was okay and she opened her eyes and gave me a big smile. I said good morning and told her that I was going to change her. I told her "Boy you sure Pee a lot at night. That made her laugh and I like it when she smiles and laughs.

So, now I cook breakfast and try to get her to eat. Breakfast is one meal that I still feed her with a spoon. She does pretty good with that but other meals I sometimes feed her with a syringe at least until I get the weight game going in the right direction. this morning she is going to get cream of wheat cooked with evaporated milk and adding a big chunk of butter and brown sugar. She will finish that off with an Ensure. So here we go!!! The engines are running, the heater is on, and the tank is full of gas. Lets go, RAZ

Knock!! Knock!!!

I told you the other day that Patsy wasn't doing very well. Carol told me that Patsy has a flu like virus and we have stopped all other meds and are working on getting her over the bug. She has been running a fever and not feeling very much like doing anything but sleeping. She is actually kinda awake but resting with her eyes closed. I was up with her some last night making sure that the fever did not run away with her. 102 was the highest it got.

the Medicaid examiner was here today. She asked, "Does Pat know who you are?" I thought about that a bit and replied, "I know who she is!!!!" "She is the love of my life and I need to take care of her". I really don't know for sure if she does know me but I think she does.

Here is something you may not know about me. I am a hopeless romantic. I LOVE TO KISS!!!!!

No, not the I want to have sex kinda kiss, more the I love you kinda kiss. My Baby really likes to give me kisses. She better know who I am because the way she kisses, if I thought she thought I was someone else, WELLL!!!!! I am not sure if i understand why she can't talk much, and I am not sure when I ask her if she knows who I am that she just looks at me and doesn't really answer. But I know she likes to hold my hand and the kisses have never been better. My reward I guess.

Keep riding along with us but if the door is closed, Knock!!!! We really appreciate you all putting up with me as we travel on this long journey, RAZ

OOOOOPPPPPPPPSSSSSSS

After days and days of moving in the right direction, Today things are not going very good. I have talked with carol and she is taking a look at things. Patsy hasn't been the same for two days now and today she seems to be somewhere besides here. Also, the big tendon that comes from her ear to her collar bone is swollen and looks bruised. I hope the cops don't come by, they will think that I have done something to her. I did get her to eat quite a bit today so far. She had a banana and an ensure. Then I gave her a bowl of hot cereal with brown sugar in it. It is time for lunch so I better see if she will eat.

Not sure what to think but I will be here for her no matter what. RAZ