Life Quotes At CharmRoyal.com

Tuesday, August 31, 2010

Here Carey!!!

My daughter commented "what is the answer" so here it is. We went to Carols yesterday and that was a chore. Patsy almost had to be carried to the van and into Carols office. Carol tested her and here are the results.
1. her immune system is working great
2. her lungs and heart are fine
3. her kidneys and spleen and other organs are okay, I think one kidney was down a little bit
4. most importantly to me, her brain is functioning the way it should

I asked her if her brain working properly means that she doesn't have CJD and she said yes.

But, her motor skills are what is affected and that is why she doesn't have control of her speech and legs and arms and her other body functions. When you talk to her she understands what you are saying but doesn't always know how to answer. She still answers me with "Hi Baby" when I address her that way. She still eats really well if I feed her but we are still needing to put some weight back on her. We are working on that.
Carol started her on some stuff today to work on the muscle issues. I won't take the time here to address that but we are hopeful that it will work on rebuilding. Carol thinks so, so I am a player.

So yesterday I asked Carol if she knew any reason why I needed to stay home from work and spend more time with Patsy, she said NO!!!! I haven't seen a lot of changes lately so, with the help from my kids, I am going to go put in a few hours and see what happens.
Thereasa, Christy, and Jenni, and a friend of the family for years, Kari Norton, are scheduled to take shifts and help me out. My daughter Carey, is also available to come and help and has offered to but she lives in Nampa and is VERY, VERY, VERY pregnant as usual, so she gets excused for now. Also. Katy in Alaska, said she would come down and spend a week or so but I think we have it handled. The last time Katy tried to help she sent Pat a darned (notice I didn't say the other word) puppy. So now I have more things to take care of.

Patsy says she is fine when I ask her if she is okay. She still knows who everyone is and enjoys seeing them when they come. We haven't seen Kari Norton for years and she remembered her.

So, tonight I gave her a really good bath, I got a really big hug, I told her how beautiful she is, she laughed, I treated her to a baby powder rubdown, and then I gave her a kiss and reminder that I loved her very much. She seems happy and restful. I gave her the first treatment tonight that Carol sent home with me today. Things are not good but things are good if that makes any sense.
One day at a time I tell her, and that is how we live our life now. And with you all riding along with us and your thoughts and prayers, we will make it. goodnight for now, RAZ

Sunday, August 29, 2010

Should I or shouldn't I, that is the question!!!!!!!

What a decision I need to make. And Patsy didn't help with that decision today.
I have been asked to go drive onion truck for the guys I worked for last year. I need to start wed and the work will last until the first of Nov. The hours are long and the pay is not the greatest but I could use the money to help get through the winter.I have people that are scheduled to take care of Patsy while I am gone and I am never more then a few miles away. I think it would be good for me to get away a bit.
The problem is that if she is not getting better and if things start to get worse, I will be sad if I miss a day with her.
She did not have a good day today. Twice she told me that she thought she had CJD disease. She is having problems trying to put words together some times and she needs to be fed all the time. She can still eat on her own if you have the time to wait for her. Tomorrow we go see carol again and I will ask her what she thinks.
In case there is any doubt as to my intentions, I am not trying to get out of taking care of Patsy and will still get up early to get things ready before I go and I am sure a lot of late nights getting her ready for bed.
Life is funny. Last year while I was driving, she would meet me at the curb with a sack of peanut butter cookies on one of my runs. Boy am I going to miss that. She will be in good hands if I decide to try it and I can always quit if I need to and I think they would understand so we will see. Thanks for riding along tonight, RAz

Saturday, August 28, 2010

let go for a drive

Not a lot to report tonight. We watched a movie earlier and then I asked her if she wanted to go to Melba with me. She said yes so I got her dressed and away we went. I sure hope she gets some of her legs back soon. Getting her to the van is a chore. But she sat up front with me and we had a pretty good time. She started hurting so I fixed her up a little pain medicine. I think she had a good time...
That is all for tonight. RAZ

Thursday, August 26, 2010

My Sweetie thinks she is Thirty Three
















Oh man, I so wanted to do that cake from scratch but my daughter Carey called and said she was coming to see mom for her birthday and wanted to bring her a cake. What could I do???? I didn't want to hurt her feelings so I said okay. Dangit!!!!!
So I took Patsy to Carols today and while we were gone, I had Jenni come by and do some fun things for Moms birthday. I will put some pics on here.
Why does it say JO??? Well, one of my sons used to alway "Hey Jo Mamma" and it kind of stuck. Patsy never wanted to be called granny or nanna or grandma so she wanted her grandkids to call her Jo. Now they all call her Grandma Jo.
A stop on the way home to pick up a piece of jewelry she wanted and home for the surprise. I could not believe that she would she some of the things before we even got up the stairs to the bus, but she did and started to cry. It was fun and Jenni did a good job.
The gals from the church dropped by and brought her some more cookies. This time she took all the cookies into her so that she knew there was more then just one cookie. Dangit!!!!!!
Carey brought the cake and came over with the kids. Then most of the grandkids showed up to say happy birthday and now the cake is gone. Holy Dangit!!!!!!
Ok, so here is the news on Patsy, I hope you have a minute more. Last week when we went to Carols, she told us that Patsy had a viroid that was feeding on Patsys B-12 and that there was no B-12 in her body. That was on Tuesday and so I stopped on the way home and picked up some B-12 and started her on them right away. The next day I noticed the difference right away. the B-12 is 500 mcg and she was taking 2 three times a day.
Thursday the kit came in to start the process of getting rid of the Viroid. We started that on Friday. I think if you read the blog that you can see that there was some changes happening to Pats mental part that I was hoping was because she was taking the kit. Last night I was concerned that Patsy was slipping further than I was happy with. I called Carol to update her. She asked me if I had given her the third dose for the day and I said no. She told me not to give her anymore last night and not to give her any today and to come see her. When Patsy woke today I could see right away that she was better and told Carol when we got to her house that Patsy was back. So Carol went to work to find out what was going on. Here is what she determined.
When she test the X-40 kit with Patsy, it tested really good, I saw it. But what we never tested is what would happen if we put the X-40 with the B-12. That is where we found the Problem. They won't work together and that was causing some problems. Plus, the new dosage for the B-12 is one pill in the morning and one at night.
Patsys body really reacts to the B-12 and she really likes it so we didn't want to take it away.Carol was able to put the vibropathic with the B-12 and it was okay and her body excepted it. So that is what she is taking for now and we will take a look at it next week.
I believe Patsy had one of her best days in a long time. She was awake, alert, talked with all the kids and grandkids and knew who they were. I bought her a necklace with her birth stone and I was surprised that she knew right away what the stone was. She answered the phone and talked to Christy for a bit. She has been smiling and having fun all day. Can she walk yet , no. Can she go to the bathroom yet, not yet. Is she still with us, you better believe it. Does she know how old she is today, not a chance, HEHEHE.
On the way home from Carols, she said "it is not my birthday"
When we were at Carols, she was 49. I told her that I would be in trouble because we just celebrated our 39 wedding anniversary. That means we got married when she was 10.
When we got home, she told someone that she was thirty-three.
Hey, I don't care how old she thinks she is, I just know that she has lived to have another birthday to the surprise of a lot of people I think. And as before, we will take every day as a gift and live it to the fullist.
So, enough for now as I need to go attend to my favorite gal and I have said to much anyway. Thank to all of you for riding along with us and for your prayers and thoughts. We need them. RAZ

Tuesday, August 24, 2010

How the heck do I make a cake from scratch ?????

Sorry I didn't get a story last night, I was to tired to type. I went back to work for Mike today. He lent me some money to work on the bus and I would like to get him paid back. Thereasa stayed with mom today. I don't know what I would do with out her sometimes. All of the kids have been great help and support. We both commented on the fact that she was talking and smiling and laughing better then yesterday, but I wish she would move her arms and legs a bit more. I think she needs to get up out of the bed more but I want to see what happens after she completes the cleanse that she is doing to get rid of the viroid. Carol wants to see that gone and then she says we will start rebuilding
Her birthday is thurs and I asked her what she wanted. She say nothing but I have other plans. One of the things that she is going to get is a cake made from scratch by me. That ought to be a site. I have never done one and I have a little learning to do. HELP!!!!!! Where is that darn Cathy or Davalee when you need them. Carey, can I borrow that darn cook book again??? I have a camera and I promise to do some pics. Hey, do you want so send her a card?? 1433 Ross Rd, Weiser, Idaho 83672
So, Patsy seems to be doing okay. I don't see any great improvement or any great amount of loss. That I guess is the good news. Oh, by the way, she called me on the phone again today and she sounded lots better. I really enjoy that for some silly reason.
Thanks for riding along, RAZ

Sunday, August 22, 2010

I miss that gal on the message machine

I need to go do a little work so I have been working with patsy to be able to call me when I need to leave her here alone. A month ago that would be an impossibility but she is doing better. She will have to stay in bed and the kids will need to come by and help her from time to time but we are going to try it.
So I got her phone out and charged it up. I can't remember the last time she made a call before the last couple of days. I called her phone and got her answering message. Holy shocker. I miss the gal that made that message. I can't explain how I felt to hear the voice from a time when Patsy was strong and sharp. I really do miss that girl. It is like I live with a different lady. But as I have stated in the past, we live with what we have been dealt.
I left Patsy for a while today to go see what I will be doing this next week (layed out a fence for my old boss). While I was out there, Patsy called me twice. She is doing better. It was fun to talk to her that way. I just fed her a big dinner and she ate really good. She is still having a hard time with the brain but not as bad as she has been. I think the stuff carol has her on could be stirring things up a bit. I will ask her next time I see her. Anyway, I would like to see her get a bit better and then I am going to give all of you here cell number. It would be nice to have all of her followers call her and just let her know that you are out there riding along. We will see how she does in the next couple of days. Thanks for riding the road with us, RAZ

Friday, August 20, 2010

What peanut butter cookie!!!!!!!!!!

Well, not to bad a day. I dear friend stop by and brought Patsy a cookie. Patsy asked, "why did she only bring one cookie??" I told her I don't know, maybe she ate the rest of them on the way over. She said that sounded strange. I hid the bag and now all the evidence is gone. Hehe. Holy peanut butter tummy ache.
Back to Patsy. I would have to say today was not as good as yesterday. It started out pretty good but I gave her so much stuff today, maybe it is effecting her a bit. She seems okay but not as sharp as yesterday. She had a harder time with the phone but we had fun anyway. She is resting really good tonight. She really doesn't have any problem sleeping like some said that she might. She snores like always. Because she has been doing better, I am able to sleep by her and I have been getting about 6 hours a night which is good.
I made her salmon and watermelon tonight and she ate really well. I topped it off with a store bought peach cobbler. I felt sorry because that lady only brought her one cookie. So, a good dinner, some peach cobbler for desert, a wonderful kiss and a hug, and she is just about ready for bed. Maybe she will be able to go to the VOI Picnic tomorrow. We got a check from a family member so now we have gas money to go. Thanks a bunch, it really helps. Thanks again for riding along everyone. Have a good night, RAZ




Thursday, August 19, 2010

Help me move the darn chair!!!!!

Here is a cute story.I was moving a chair into the bedroom to see if I had room to sit the rocker back by the bed. I didn't work. When I was taking it back to the living room, I asked Patsy to grab the bottom and give me a hand. She actually started to get out of bed and try to help. So the good part of story is that she actually thought she could do it. The bad part is that she actually thought she could do it. I stopped her in time, but I thought it was great.
We went to Carols today and picked up the stuff Patsy needs. She sat in the front with me over and back. When we got home, I bought her a root beer and we went out to show her the truck I will be driving. She did really well. When we got home, I helped her to the chair in the rv and she sat there while I redid the sheets on the bed. She continue to sit there even after I was done making the bed.
I know, this all seems silly to you. But I have not seen her out of bed this long for some time.
The bad news is, she still has a hard time feeding her self and she still isn't walking. But she is stronger today so we are hopeful.
Oh yeah, I left her alone today while I went to do the laundry, She called me twice to let me know she was alright. Hehe. I just think she issed me. Thanks for riding along, RAZ

Wednesday, August 18, 2010

Holy cellphoneatalkee!!!!!

Remember when I used to talk about babysteps!!!! Well Patsy took a teenager step today. So, here is what is happening/
I have been asked to drive harvest truck again this year which last about 2 months. We could really use the money. I owe Carol some and am trying to figure out how to pay her. Patsy wanted to go to the coast but I think we will put that on hold for now.
So, I want to drive but a week ago I was afraid the answer would have been no. Now we are going to try to make it work with the help from my kids and friends. T here will be a time or two when I will have to leave her by her self while waiting for some one to get here. She understands that she can not get out of bed and so that makes it easier. We will have someone here most of the time and I will be able to stop in between runs.
But I wanted to be able to contact her and have her contact me. Two weeks ago I gave her the phone and she was not able to make a call. But today, Holy Crap!!!!! Not only did she receive and make some calls, she actually was able to have a conversation with them. Julie from Ride Idaho called her and she answered the phone and talked to her. I put my number into speed dial and she was able to call me several times. It was great fun!!!
So, here is what I noticed today after another day of B-12. She continued to move her legs and they didn't hurt. She was also able to laugh and we talk alot. That is a change of pace. She ate really well, even having a late bowl of cereal. Just seeing her move instead of just laying there was a great feeling. I didn't get her up today but tomorrow we go back to Carols to get the stuff that will kill the Viroid.
Is this something to hang onto or just a couple of good days???? I can't answer that question but I will tell you that is was great seeing some of the old Patsy back. I don't think she will be back leading the Choir tomorrow but she talked about it and that was cool.
Well, I need to go get her ready for bed so thanks for riding along. Goodnight from RAZ.

Tuesday, August 17, 2010

Holy B-12!!!!!!!

So much to tell ya tonight I don't know where to start.. First let me tell you about a gift I received today. When I opened my computer case tonight to do some work left over from the weekend, I found some money that some one had put there. I don't know who put it there but it had to be someone that was on the ride. I really hope that person is one of Patsys followers and I think they are. Anyway, the money was great and is really needed but more important to me is the love and friendship that is felt from whoever sent it. I told Patsy, she cried!!! Thanks again.

So we went back to Carol today and I am as excited as I have been in months. I watched with my own eyes as Carol did some testing and I believe she is on to something. Patsy has no B 12 in her body and as Carol was telling me about some of the things that would cause, I started to get on board with what she was saying. Here is where is might seem a little strange. Carol has identified a viroid that is feeding on that b 12. My understanding is that a viroid is like a virus only much smaller. In reading about it I hear some of the same words used while talking about CJD disease like prion, and protein, etc.
So I am not sure what it all means but we ordered the stuff today to kill the viroid and it will be here thursday. In the meantime, Carol said I should get her on massive doses of B 12. I picked some up on the way home and I gave her 2 tablets on the way home and two more tonight.
You won't believe what happened. I was in the bedroom watching tv with her and I saw that she was moving her legs. Pulling one up and then the other, over and over. I could not believe it. I gave her a drink of water and she drank it with almost no shaking. All of this after having just four pills. And then the big shocker. At about 9:45 while I was sitting with her, she ask me for a tomato. Not a big deal you say???? Well, ask Carey what mom has looked like the last week at 9:45.
Ok, ok, I will settle down. It is good to see things going in a different direction if even for one day. I can't wait until tomorrow to see what has happened. If the B 12 is helping her and we can get rid of the viriod that is feeding on it, maybe Patsy has a chance, That is more then the Doctors have given her so I am going to hold on to it for a bit. Thanks for riding along. Please check in tomorrow night and I will give you a report good or bad.
And again, thanks for your financial support and your prayers. I have said it before, and I will say it again, I believe they are helping. RAZ

Monday, August 16, 2010

What is your name???

I was talking to someone this last week and they told me that they went through the same situation with a love one that I am going through with Patsy. They talked about the nursing home and the hospice care. They told me about the things that happened when they would get together once or twice a week. I chuckled a little bit. They did not go through the same kind of thing if they did not spend every minute of everyday with them. I have learned so much these last few months.
I have been tested on a daily basis and sometimes I fail. But I am still in the game.
We talked to a Doctor on Ride Idaho and he said He thought Patsy has ALS. Some of the symptoms are the same but Patsy is having issues in the brain with memory and that is not a symptom of ALS. So we play on.
Patsy had a so so day today. She ate really good, she watched tv, and she had no pain pills. I went to Nampa this morning and left her with Thereasa watching her. They had some lunch together. When I got home I worked on the bus air conditioning and finally got it working. I believe one roof air is all I am going to put on the bus. I am going to install a exhaust fan in the rear and that seems to be plenty.
Patsy didn't know my name.
Ouch!!! That really hurts me. How do you spend 39 years with someone and have them tell you that they don't know your name. She knows who I am but can't recall my name. I have been called all kind of names before so I guess no name is not the end of the world.
Tomorrow we go see Carol. I will have to carry her to and from the van. When I say carry, I mean that I get behind her and wrap my arms around her. I can then hold her up and not worry about her falling. She is still able to get around a bit when we do that. So tomorrow night I will let you know what Carol has to say and what our next move will be.
Sorry that I haven't better news yet, but keep riding along and keep saying a little prayer, RAZ




Friday, August 13, 2010

We are still here

I better do this because I am catching so much flack. So let me tell you what is happening. The last couple of days have not been good. Patsy has had some good ties and bad times. It is almost impossible for her to walk and I have noticed that she doesn't move her arms much any more. Yesterday, Carey and I gave her some Milk of Magnesium for obvious reasons and last night she told me that she needed to go to the bathroom and we helped her and that was great. Last night and tonight she did go with us to dinner in her wheel chair. Also very good even though I have to feed her. Tonight after dinner, I gave her a bath and I needed Carey to help me get her out and to bed.
She still seams to be better in the mornings but gets bad by the end of the day. There is a doctor on the ride who came over and talked to her. He says he thinks she has ALS. Guess what, he told her she is going to die. I wished he had let her be. If she is going to die, we don't need to here it from every doctor in the country.
I think she is still losing weight but I have been trying to feed her enough food.
So the report is, I just don't know. We live just one day at a time and we will wait to see what the next day brings. Patsy is still the love os my life and each night I pray for the strength to be able to take care of her. I tell her I love her and she comes back with I love you too. It make my day. Thanks for riding along, RAZ

Sunday, August 8, 2010

Why the heck is she crying??????

With days like today, I wished we could stay here for ever. The day started at 5:30. I had given Patsy a bath last night so all I had to do was get her dressed and head for the car. The motel where we stayed had a pretty nice breakfast bar so we ate there with the kids. Patsy ate a big meal. Then I loaded her up and off we went.
Patsy was crying in the back of the van and I asked her what was wrong. She was upset that she was not able to help with ride. I thought that was wonderful. her mind is so much sharper then even a week ago that i am amazed. I am sure glad she was able to come. She makes my day better even tough she makes it tougher. We loaded her in the wheelchair and I pushed her around the camp. The fact that she got out and went was a reallu good sign.
Wish us luck tomorrow as we do day two and thanks for riding along, Raz

Saturday, August 7, 2010

A HOT DOG????

If you are checking in with us tonight and are hoping that Patsy had a good day then you are in luck. What a day. We slept in the van last night and it was a little warm outside. I drove around and kept Patsy cool until it was late enough and cool enough to sleep. And sleep she did!!! AND SNORE SHE DID. So much so that I had to roll her over so that I could get some sleep.
Breakfast. She had a banana that Doug gave her and she told me that she wanted a hot chocolate. WOW!!! That was something new and I am not sure where it came from but I will take it. When ever she starts living again, it makes me happy.
So I took her around town and out to the lake and we had a great morning. We took some time and she sat in the back while I worked on the van. It started to get hot so we went for another drive. I asked her what she wanted for lunch and expected the usual "I don't want anything". HOLY KNOCK ME OUT OF MY SEAT. She said she wanted a hot dog and a Doctor Pepper. I could not believe it. So I got her a soda and a hot dog and she ate the whole thing
We got her in the room at the motel and i took a shower and headed for a meeting.
Chad and Carey showed up and I left her with Carey. While i was gone, she told carey that she needed a pain pill and wanted a #10 Norco. Carey called me and I told her I would be back in a bit and when I got home, I gave her a #5 instead.
It is time for a hot bath and she is going to scream at me when I try to get her to the tub, but it is going to happen.
So tomorrow we start the event and it becomes to late to turn back unless we have an emergency. So we see what is next in our lives and I will share with you tomorrow night if I can. Thanks for riding along, RAZ

Friday, August 6, 2010

I brought her with us. Will I be sorry????

I asked pat what she wanted me to get her for our anniversary. She looked at me but did not respond. Well, she doesn't know it but she gave me the best gift ever. She stayed with me long enough to have another anniversary.
We left today and headed for northern Idaho. We stopped in Lewiston and had a late lunch.She was a little tired but she ate a whole meal. Boy that makes me happy. We arrived at the rv park in Coeur d' alene were will spend the night. Tomorrow we will go up the road to Hayden.and I will get her in the motel and then get everyone set for the start of the ride on Sunday. It is coolng down here and Patsy seems to be doing ok. She isn't talking alot but that is not out of the ordinary .. I have not gotten her up yet and I am happy just letting her take it easy. She told me to leave her alone but I think she thought that I was going to take the cold wash rag to her to cool her down. I just washed here face and called it good.
So. nothing big to report tonight but we want to let you know that your prayers are helping us. Please say another one for Patsy. thanks for riding along, RAZ

Thursday, August 5, 2010

You tell her she can't go!!!!!

So, Carol says things are doing well. She says that the brain and all the systems are on. We had a little problem with the blood pressure that we will start to address when we get back next week.
When she sits up her blood pressure drops and when she stands, we believe it drops further. It may explain why she wants to stay in bed as much as she does. I will monitor it closely this next week.
I told her again tonight that she could stay with Christy and I got the same answer.

She said she really wants to go and I don't know what key I hit to make this text do what it is doing. CRAP!!!! So, I am going to load her in the van and we are heading north. She seems to be doing pretty good today. I bought her some almond roca today. She got a piece tonight and she thought that was great.
I told my son today what a hard time I have sometimes. When i have to get ready to go on a trip like this and she is unable to help me. Getting the laundry all done and getting the food put together and bedding and clothes and then all my stuff. But then I looked at my sweetie tonight and when she told me that she loved me, and I told her that I loved her, all those thoughts just went away.
I have said it before and I will say it again, I am the one that is being blessed. I would not trade a minute. I don't know if she really understands me when I tell her how much she means to me, but I tell her anyway.
I will take the computer and Keep you all informed on how she is doing. Thanks for riding along on our journey, RAZ

Wednesday, August 4, 2010

Holy Heatstoke

Well, today was a pretty good day. Patsy and I woke up about 7:00. She was a little confused but she was giggling and talking and we enjoyed the morning. I made her a little breakfast and we got the day started. She said she needed to go to the bathroom so I helped her. It might not seem like much but the fact that she new she needed to go and was able to get to the bathroom in time was a good thing. So, we spent the day together. I had work to do to get ready to go to the Ride Idaho event on Friday. My daughter has offered to watch her for the week and that would sure make my life easier but, I made her a promise and if she wants to go with me this next week, I will take her. Every time Christy or I say that she can stay at her house, we get a very dirty look. So, we are off to see Car0l in the morning, and if Carol says that she can go, then we are off on friday.
The bus has been very hot and I won't get the roof air working until I get back. We spent the evening with Marty since Thereasa is out of town. I think the heat zaps her strenth. She always gets a little worse at night so I am trying to keep her cool.
Break time!!!
I just went to Martys and got Patsy home and to bed. It is starting to cool down in here and she will be able to sleep.
Lets all hope that Patsy is able to go friday. She really is counting on it. Please keep her in your prayers. RAZ

Monday, August 2, 2010

IS THERE A WAITER IN THE HOUSE

What is wrong with this picture???
Patsy got a wake up call today with a small sponge bath. Then a bite to eat that she had help eating.
Next, a bed in the van and a trip to Emmett with a driver that could just be the best looking guy in the state. After a trip back home, a nice nap to rest from all the hard work getting to Emmett and back. Now it is time to think about dinner. After Patsy placed her order, it was cooked for her and then the dishes were done.
Oh Oh. Christy, mom says her hair is getting to long. Can you run over here right now and give her a hair cut so that she will ready for Ride Idaho.
Shoot, Christy got some hair on Patsy so it would sure be nice if she could have another sponge bath but she would like to do it laying in bed because she is tired from Christy cutting her hair.
Finish off the evening with a video on Katys blog about her grandchild singing getting ready for her choir in 20 years, a few cool drinks of water, and a goodnight kiss from Raz. Now she is resting getting ready for another busy day tomorrow.
I am starting to wonder!!!!
Anyway, Patsy had a pretty good day and I think she is feeling pretty good tonight. She is a little wacko. Maybe to much heat and to much going on today. She says she is stiil going with us this weekend and she still knows who I am. I asked her if she knew where we at and she said Grandpas cabin. So, still room for some improvement. I have noticed that when she gets tired, she does seem to loose it a bit.
She has not had a pain pill in days. Carol says the aluminum has been cleared up and I think the aluminum was the cause for the pain in her muscles.
Okay, I am tired so I will call it a night. Thanks for riding along. RAZ

Sunday, August 1, 2010

Hello Baby

Hello everyone

So how about some good news??? Patsy had a really good day yesterday. What constitutes a good day??? Well, here it is.
First of all, when ever I go to check on Patsy, I always say "Hello Baby". When she says "Hello Baby" back, that is a good day. When she wants to try to go to the bathroom to do her business, that is a good day. When she knows my name and where we are at, that is a good day.
When she says she wants to try to walk to bed on her own, that is a good day.
She cried!!! I said what is the matter??? She said that on days like this, I don't think I am dying. That is a good day. I held her in my arms, I kissed her, I told her that I loved her very much and she said she loved me. That is a good day!!!!
Now, just so we don't get off track, we still have a long road to travel. Patsy still has a long way to go before this battle is over. She spends most of her day in bed. She has little control over her body functions and wears Depends so that she doesn't have accidents. But, it is fun to be able to communicate with each other and discuss what is next for us to experience.
We are making plans to both go on the Ride Idaho next friday. Our anniversary is Friday and we are going to make it that long.
So, today we got up today and she didn't feel to well. I cooked us some eggs and bacon, clean the cabin back up, and we head for home. She is resting tonight and we will see what tomorrow brings. I asker her if she had anything she want me to write on the blog. She couldn't think of anything. She get tired this time of night.
Ok, Gotta go for now. Thanks for riding along, RAZ